So we checked in today at the front desk of Children's Hospital, we usually give them our names and they look up our driver's license, blah blah blah. But, when you come on a regular basis, you get fancy laminated nametags so you don't have to check in each time. I guess we are official now!
Trenton went through his regular workup, he's getting quite good at it! He actually let them put the pulse ox on his finger (this is the worst part of the whole process for him)! Then they did the finger poke to get some blood. He didn't even make a sound! He was just sitting on my lap playing with this silly toy. Then he kept trying to lean over so he could watch the lady put his blood in the tube. He was quite fascinated by the whole thing.
After some waiting in our room, cute doctor tells us that Trenton's platelet count is 9,000. This is still super low, but at least he's headed in the right direction. They checked him out a bit, inspecting new bruises he has and looking in his ears, etc. He was so funny through the whole thing, just smiling and laughing at anyone who would look at him. Dr. Jones (really, that's her name) said he made her day with his smile! At one point, cute doctor was looking in his eyes with the light, and getting in close. Trenton just kept leaning in smiling, I thought he was going to give him a kiss! Our doctor said she has never seen a 16 month old act so happy through that exam.
So, we will continue with the Prednisone for two more weeks. We'll get his blood checked at Kaiser next week and then see the Hematologist again the week after that. If his count is at 50,000 or above, she'll wean him off the Prednisone and see how he does. If not, we may need to do another round of the IVIG (the infusion he did while in the hospital). She thinks that he really didn't get a fair shot at that working last time, since he had the bronchiolitis at the same time.
She still doesn't want to do anything really aggressive to his little body, just take precautions and let him work it out. She acknowledged that it feels like they are dragging their feet, but they just don't want to give harsher drugs (like chemo) to him yet. We appreciate that she said this, since we feel like we are just told to wait all the time. We are sick of waiting. But, we are getting quite good at it now.
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haha...cute doctor. :)
ReplyDeletei'm glad his levels are heading up...we'll be praying that they keep doing that! and isn't it funny that the pulse ox is the scariest part? my kids have freaked out over that thing before too...so weird!
so did Trenton almost kiss cute doctor or did you? this sounds like good news, but you hate to hear that word "chemo" yikes!
ReplyDeleteHang in there. -Kim
Hi Mary Jo and Tyler
ReplyDeletePicked up my "stuff" from the church box this week as we have been gone. This communication is
A-OK!! Your journey with Trenton is so similar to our grand nephew Tyson(almost same age when diagnosed and such huge relief when told NO Luekemia)! Talked with my neice, the biggie was patience but with family/friends support and prayer they felt "lifted up" and loved. When I read of Trenton's happy face and smile through it all, I smile and thank God for the brightness he brings to everyone! We pray that Trenton's platelets be stableized soon and that this episode of ITP may never happen again. We just saw Tyson this summer and he is a healthy 5yr old
in Kindergarten.
Love you
Veralyn and Mert too
Hey guys,
ReplyDeleteThanks for starting this blog! It's great that everyone can keep updated on the little cutie. We're so sorry that the past couple of months have been so up and down and I'm sure so scary at times too. We'll keep you all in our thoughts and prayers as you try to stay patient in all of this. We're just so glad that Trenton is happy and not in pain through it all. That's a huge blessing! Let us know if there's anything we can do for you ok?
Gwen & Tim