Worse but unaware

So, not such great news today. Trenton's platelet count has gone back down to 6,000. At this point, we'll probably wait a little more, and maybe try doing IVIG (an IV infusion) and/or Prednisone again. We've done both of these with no inprovement, but Dr. Hays says that sometimes it works a little better when the person is more chronic, which is what Trenton is starting to be.

Hays also said she could put us in touch with another parent who has an eight-year old girl, who's had ITP since she was 6 months old, and still has very low counts. At first, I think, great, someone else who's going through this! But then, that also scares the crap out of me. You mean, this could go on for 6 MORE YEARS?!

We will not be doing that nasty chemo-like drug. The doctor hasn't used it on anyone under the age of 5 before, and is very hesitant about that. She's going to be talking to another ITP doctor in New York and ask some questions. Then she'll call us next week with the plan.

So, we wait some more. Hays even thought Trenton has looked better than she's ever seen him. The nurse also told us that when Hays saw Trenton on her schedule for today, she got so excited. Gotta love that.

So, having taken the day off for this appointment, I thought I would take Trenton to the zoo. But, the zoo sucks in the rain. So we went to the Children's Museum instead, which was super cool. Trenton was a little nervous about it at first, and just kept standing there and watching everyone, but eventually got used to the idea :)

As Papa says, someone should tell this kid that he's sick, cause he certainly doesn't seem to know it!