Trenton's platelet count is at 48,000 today!! That is the highest it's been since all this junk started. When the doctor was reading the results, Tyler and I both had to ask him to repeat it. We are super excited to say the least.
We met with a hematology fellow first, who was super cool, and we kind of did a rundown of everything. Then we talked about our options (which are somewhat different from what the previous doc gave us). But after we got the results, we are definitely going to hold off on doing anything until we see if Trenton's little body will just continue to work this out on its own. But, it's still nice to know we have options!
We talked to the actual doctor later, Chris (NOT Dr. something, he thinks that's dumb). He was also very nice and walked us through what the other treatments are, but again, won't do anything unless his counts go back down.
So now we'll just get his blood checked in 2 weeks to see what it's doing, and decide what to do from here. Hopefully it's just celebrate!
Friday, July 24, 2009
Thursday, July 23, 2009
Tomorrow...tomorrow...
So we have our appointment tomorrow. I haven't really thought too much about it, but am starting to get anxious now. Trenton continues to feel really well, and seems to be doing just fine, but we always think that!
At least I am taking the day off, and we get to drive go-carts in the afternoon with Tyler's work. We'll see what Trenton thinks of that! Hopefully he isn't as terrified of those as he was of riding the carousel at the zoo last night, holy cow! You would have thought I was bringing that kid to ride a real lion! I think he was most upset that Papa wasn't saving him!
At least I am taking the day off, and we get to drive go-carts in the afternoon with Tyler's work. We'll see what Trenton thinks of that! Hopefully he isn't as terrified of those as he was of riding the carousel at the zoo last night, holy cow! You would have thought I was bringing that kid to ride a real lion! I think he was most upset that Papa wasn't saving him!
Monday, July 13, 2009
Switching
So we finally have another appointment for the big man. We go in next week Friday, the 24th. And we are seeing a new doctor. I'm a little nervous about it, mostly because I don't want to hurt the other doctor's feelings and I wonder what we'd say to her if we see her there.
But we were starting to feel a little frustrated when we'd hear something different at every appointment, and we were told we'd get a call the next week, only to have to call them three weeks later. I know my kid is not dying of cancer or anything, but it's still terrifying for us at times. The doctors really do seem to care when we are there, but we also feel like we are being blown off a bit. Maybe it's not a big deal, but it is to us!
Anyway, we'll see how this one does! Trenton continues to do well. He is bruising like any other almost two-year old crazy climbing maniac. He's had a few tiny blood blisters in his mouth, but no nosebleeds for several weeks. He had to be on prednisone recently for asthma, so maybe that helped bump his count up a bit too. We'll see.
His new favorite toy at bedtime is this super cute black bear from his Great Auntie Anna. I just had it sitting there the other day on a pile of other bears, and he INSISTED on holding it while reading his books. He must have known it was from someone who loved him! So thank you everyone for your continued support.
But we were starting to feel a little frustrated when we'd hear something different at every appointment, and we were told we'd get a call the next week, only to have to call them three weeks later. I know my kid is not dying of cancer or anything, but it's still terrifying for us at times. The doctors really do seem to care when we are there, but we also feel like we are being blown off a bit. Maybe it's not a big deal, but it is to us!
Anyway, we'll see how this one does! Trenton continues to do well. He is bruising like any other almost two-year old crazy climbing maniac. He's had a few tiny blood blisters in his mouth, but no nosebleeds for several weeks. He had to be on prednisone recently for asthma, so maybe that helped bump his count up a bit too. We'll see.
His new favorite toy at bedtime is this super cute black bear from his Great Auntie Anna. I just had it sitting there the other day on a pile of other bears, and he INSISTED on holding it while reading his books. He must have known it was from someone who loved him! So thank you everyone for your continued support.
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