Trenton's blood count today was 42,000. I wasn't really surprised as I was starting to see signs a few weeks ago. So his numbers were probably even lower before, and now hopefully on their way up again.
But the doctor is starting to look concerned. He usually just jumps right into his usual schpeel (not sure how to spell that) of "let's keep sitting on it!" But he didn't really have that today. He was starting to bring up the next option, a chemo-like drug called Rituximab. It's typically used to help treat lymphoma, leukemia, etc. It's not supposed to have the super bad side effects that regular chemo does, but could still make him feel yuck. It's just scary to think about all the trips and IV's and sitting around in the clinic, etc. But, we aren't totally there yet. Apparently it's crazy expensive, so insurance companies aren't super willing to see it as necessary.
So the doctor said to call him the next time we can tell his counts are lower, and get him tested, to help his case that he really needs this. Then we'll decide what to do.
It's hard because you want to do anything possible, but you also want to protect your child from anything that will hurt him! So please pray that we have the wisdom to know what to do. Or just that his counts sky rocket and stay there. That would be much easier.
