Rising again

Trenton is at 59,000 today! He was, once again, so brave! Tyler and I are happy, but trying not to get too excited. He definitely looks a lot better lately, and continues to have an abundance of energy.

I took this picture this afternoon to show just what a happy little man he is. He's really starting to like the dog too.

Thanks again to all of you for your constant support, cards, help, etc. We continue to feel extremely loved and cared for!

Holding Steady

Trenton's latest count was 25,000. Just a slight dip, but still the wrong direction! Our doctor still wants to hold off on doing the next treatment. He keeps saying that when kids start to get better, it can go up and down like this.

We did get a little into what the treatment would be like, and it sounds a tad nastier than we've heard before. But he cut off the questions and said, "we're not there yet." He's still very sweet and I'm really glad we made the switch.

Trenton is so good when we are there, the doctors just laugh. They always feel his belly to feel for the spleen, and he just pulls up his shirt and giggles. When we get his blood taken, he usually sits on my lap to do it. But Friday, he just got up right there on his own. I asked him if he wanted to just sit by himself, and he said "yea!" Which he did! He just sticks his little finger out and watches the blood drip. He certainly does not get this trait from his father! (who can't even watch ER without getting nauseous). Sorry Tyler.

When we were leaving, a firetruck was pulling up to do some sort of training, and they were letting the kids play in it. Trenton just stood with amazement, but only wanted to watch from a safe distance. He hasn't gotten brave enough to actually go inside. He did get a cool sticker though!

Fingers Crossed!

Trenton sees the doctor tomorrow and we'll do another blood test. Not sure why we need to go in, since his count did go up a little bit. But, oh well.

I'll keep everyone posted!

Daddy T

So I'm thinking I might have to re-name this blog to "Baby T and Daddy T" and give updates on BOTH of my boys!

As some of you may have heard, Tyler was recently diagnosed with Crohn's Disease. He hasn't met with his doctor after the many tests he had to do (of couse while I was out of town), so we aren't sure what we are facing yet. But he is feeling a lot better, and isn't doubled over in pain every morning. So that's always good! Hopefully we can learn a lot more when he sees the doctor.

Trenton got his platelet count checked on Friday. He has been so bruised up lately, I was just preparing myself to hear the 3 or 5,000 result, so I was super excited when our nurse told us he was at 27,000. She said it's still pretty low, but I was just excited that it didn't plummet! I think we will be seeing the doctor later this week, so we'll see what he wants to do.

Papa DR and I decided that we will just be pessimistic from now on about Trenton's counts, then we can be surprised and happy! :)

Trenton and I just took a trip to GR to visit Uncle Ricky and Auntie Sara. Here's just a few of my favorite pictures:

Another quick update

Just another update from today. The doctor called just to make sure we heard Trenton's count, and to see if we had any questions. This guy is super cool. He said it's completely normal to go so up and down, not that it doesn't suck! He said he was really hoping that we would never have to see him again. I told him I was hoping the same, but that he shouldn't take it personally. He said he hears that a lot.

He still doesn't want to do any other treatments unless Trenton's counts dips way down again and stays there. So it seems he's still optimistic that Trenton might just make himself better. So that made me feel a little better. (Better to the point that I could make it through the rest of the work day).

I'm still feeling pretty defeated. I was just so ready to put this all behind us and move on. But I asked Trenton today if he could work on making more platelets and he let out a very enthusiastic "yea!" so, we'll see.

Crushed

Trenton's count is back down again, to 17,000. I really tried to prepare myself for this, thinking the rise in counts was really too good to be true. But we were still trying to hold on to that hope as well.

I haven't spoken with the doctor yet, so not sure what the next step is. We'll pass it along.

Thanks for all the prayers, Tyler and I need 'em!

Hoping

I am taking Trenton to get another blood draw in a few minutes. He's still been doing really well, although I have noticed a few more bruises. But he bounces all over this place, so it's probably normal!

I will try to update as soon as I can!